TOTALLY GEEKED!

chef · Guru

Daily Hugs for Ed Thread

ed11563 · Guru

Updates...

HR says my job is secure, I am receiving full pay forthe first 90 days as short term disability,

then 2/3 pay on long term until I retire or go back to work. My job is safe, the company doesn't fire people on disability.

I met and like my Oncologist.

I start chemo next Thursday.

She said there's a 50% chance the combination of these two drugs will contain the cancer. She didn't say the word "remission".

But I can expect to live years, not months.

I have nodules inside my lungs, which is why I'm getting mucous, and I'm coughing.

I can control it pretty much with Sudafed, Robitussin DM and Albuterol .

She said when / if I feel up to it, I can go back to work.

Fort Worth Mom · Mod/Penguin lover/Princess!

ed11563 wrote:
Updates...
HR says my job is secure, I am receiving full pay forthe first 90 days as short term disability,
then 2/3 pay on long term until I retire or go back to work. My job is safe, the company doesn't fire people on disability.
I met and like my Oncologist.
I start chemo next Thursday.
She said there's a 50% chance the combination of these two drugs will contain the cancer. She didn't say the word "remission".
But I can expect to live years, not months.
I have nodules inside my lungs, which is why I'm getting mucous, and I'm coughing.
I can control it pretty much with Sudafed, Robitussin DM and Albuterol .

She said when / if I feel up to it, I can go back to work.

More prayers and hugs to you, ed.

It sounds like you have a good team of doctors.

And, you trust them, to do the best for you.

That is HUGE! smile

Hugs and prayers!

just Czech · Give Me Grand's!

Fort Worth Mom wrote:
ed11563 wrote:
Updates...
HR says my job is secure, I am receiving full pay forthe first 90 days as short term disability,
then 2/3 pay on long term until I retire or go back to work. My job is safe, the company doesn't fire people on disability.
I met and like my Oncologist.
I start chemo next Thursday.
She said there's a 50% chance the combination of these two drugs will contain the cancer. She didn't say the word "remission".
But I can expect to live years, not months.
I have nodules inside my lungs, which is why I'm getting mucous, and I'm coughing.
I can control it pretty much with Sudafed, Robitussin DM and Albuterol .

She said when / if I feel up to it, I can go back to work.
More prayers and hugs to you, ed.
It sounds like you have a good team of doctors.
And, you trust them, to do the best for you.
That is HUGE!
Hugs and prayers!

What FWM said plus a positive attitude are priceless.

My oncologist said a positive attitude will do more good then some of the best medicines. So chin up, and be positive.

Hugs.

Momala · Great cook-happy wife-superb fisherman

You might want to start researching some day outtings for your area - you don't want to go stir-crazy being cooped up in the house! Historic 2-3 hour train rides that include a meal, things like that, that won't tire you out, but get you out of the house. Hope your weight has stabilized.
Hugs!

ed11563 · Guru

I got out for a couple hours today, got the Prius inspected, mailed the mail and bought some groceries.

I was going to drive to Levitown and buy two air conditioners to replace two that have quit,

but it was raining. I didn't feel like driving Spouse's car 30 minutes each way in the rain.

We'll see what Monday brings.

Thank you my friends for encouraging me.

Ed

Lexxy · My dog name is Sasha, too!

Hi Ed! Can you get the A/C units delivered & installed? That seems like a lot of work especially in your weakened condition. Or maybe just delivered & have your boys install.

ed11563 · Guru

I picked this place because they send a 3 man team to do the installation, and take away the old ones.

Prices are reasonable too. I've used them before. smile

Lexxy · My dog name is Sasha, too!

ed11563 wrote:
I picked this place because they send a 3 man team to do the installation, and take away the old ones.
Prices are reasonable too. I've used them before.

Good! I hope they get them installed soon. The heat is miserable especially when you aren't feeling 100%. How are you feeling?

ed11563 · Guru

Any exertion leaves me short of breath.

I have to keep up my medications to keep mucous from building up in my chest.

Robitussin DM, Sudafed, and Albuterol.

I'll have to ask my Oncologist point blank whether my breathing will get better over time,

or if the "nodules" in my lungs are permanent.

I start chemo Thursday.

jlbear71 · Guru

ed11563 wrote:
I got out for a couple hours today, got the Prius inspected, mailed the mail and bought some groceries.
I was going to drive to Levitown and buy two air conditioners to replace two that have quit,
but it was raining. I didn't feel like driving Spouse's car 30 minutes each way in the rain.
We'll see what Monday brings.

Thank you my friends for encouraging me.
Ed

Wave when you get to Levittown. Oh wait, you mean Levittown, NY. I am next to the other Levittown in PA. Did you know that Levitt built/designed three planned communities? Levittown NY and PA and Willingboro NJ.

flan327 · Itty bitty's Grammy

We will all be sending strength & good thoughts your way on Thursday, ed.

flan

Lexxy · My dog name is Sasha, too!

I thought for some reason you were already doing chemo. Good luck. Are you having someone go with you to the first one? I know you can get Uber there but I really think you should have one of your sons take you. You never know how you are going to react to the c0cktail.

ed11563 · Guru

Lexxy wrote:
I thought for some reason you were already doing chemo. Good luck. Are you having someone go with you to the first one? I know you can get Uber there but I really think you should have one of your sons take you. You never know how you are going to react to the c0cktail.

Hmmm. It's a 10 minute drive, I've been planning to drive myself.

I should ask the nurse what she thinks.

ed11563 · Guru

jlbear71 wrote:
ed11563 wrote:
I got out for a couple hours today, got the Prius inspected, mailed the mail and bought some groceries.
I was going to drive to Levitown and buy two air conditioners to replace two that have quit,
but it was raining. I didn't feel like driving Spouse's car 30 minutes each way in the rain.
We'll see what Monday brings.

Thank you my friends for encouraging me.
Ed
Wave when you get to Levittown. Oh wait, you mean Levittown, NY. I am next to the other Levittown in PA. Did you know that Levitt built/designed three planned communities? Levittown NY and PA and Willingboro NJ.

I'll be sure to wave anyway smile

I know what to do_sometimes · Frozen Sucks!

Ed since you've done business with the A/C store in the past, can you just call them, tell them what you want, let them know you are ill right now and ask if they can put the A/C's on your CC and send that team out, before thursday? You want to be as comfortable as can be.

ed11563 · Guru

Good idea.

ed11563 · Guru

Good night, fellow posters

Momala · Great cook-happy wife-superb fisherman

Hugs to you today :)

flan327 · Itty bitty's Grammy

And more {hugs} for ed.

flan

just Czech · Give Me Grand's!

Sending a hug your way, Ed.

Hope today is a good day. :)

Lexxy · My dog name is Sasha, too!

Another hug from me Ed.

Blankie · Guru

Ed, thinking of you and sending good vibes your way as you start the chemo tomorrow.

ed11563 · Guru

Good news,

The protein in my urine is not a problem, and I will be starting in the study tomorrow (Thursday) morning.

I know you'll be with me in spirit,

Ed

just Czech · Give Me Grand's!

ed11563 wrote:
Good news,
The protein in my urine is not a problem, and I will be starting in the study tomorrow (Thursday) morning.
I know you'll be with me in spirit,

Ed

Yes, we will, ed. Yes, we will.

Honeys_Mom · Mod & Permanent Board Sweetheart

Will be thinking of you, Ed.

flan327 · Itty bitty's Grammy

Good morning, ed.

flan

Momala · Great cook-happy wife-superb fisherman

Wishing you well today. Hope everything goes smoothly.

Fort Worth Mom · Mod/Penguin lover/Princess!

Good luck today, ed! smile

Lexxy · My dog name is Sasha, too!

I hope the study is going well for you today Ed.

ed11563 · Guru

Hi, update,

round one of chemo today, no pain, no problems.

so far no side effects. smile

Honeys_Mom · Mod & Permanent Board Sweetheart

Yay, Ed!

Momala · Great cook-happy wife-superb fisherman

Good Morning, sunshine! So glad to hear the first round went well :)

Fort Worth Mom · Mod/Penguin lover/Princess!

That's good news, ed! Yeehaw! smile

just Czech · Give Me Grand's!

Glad all went well for you yesterday, Ed. :)

Lexxy · My dog name is Sasha, too!

Good to hear Ed!

ed11563 · Guru

Just had an egg-McMufin, a bottle of glucerna,

and my second poison pill (Everolimus, AKA Afinitor). Thank you, Novartis and Memorial Sloan Kettering Cancer Center.

(3:54 p.m. Friday)

Vette · Owl drink to that!

Glad to hear your spirits are up ed

ed11563 · Guru

Thank you Vette,

Slept until 11:30, not coughing yet,

feeling pretty good right now.

Time for breakfast.

I'm glad you rejoined us here.

Ed

just Czech · Give Me Grand's!

Sounds like you are sleeping well and eating well. All good signs. :)

ed11563 · Guru

Sunday, 4.15 pm

Poison pill # 4.

Yesterday after I took #3, the back-roof of my mouth felt inflamed. I'll report that side effect Monday, when the facility is open.

Thanks for letting me vent / blog/ or what ever it is I'm doing here.

FNW · Guru

Thanks for the update, Ed. I hope you get better soon.

ed11563 · Guru

FNW wrote:
Thanks for the update, Ed. I hope you get better soon.

smile

ed11563 · Guru

Pill # 5.

So far so good.

My weight is down to 166.

(pounds, not KG)

ed11563 · Guru

Spouse hasn't had a mammogram in at least 10 years.

She's been watching what I'm going through, and says she would never put herself through this.

If/when she gets sick, she wants to just go quickly.

ed11563 · Guru

2.46 a.m., wide awake and coughing.

It seems I have a cold.

Hi Karl (Ed waves)

Momala · Great cook-happy wife-superb fisherman

Hi Ed!
Hope the albuterol helps with the coughing. Other than the cold, how are you feeling?
Hugs from Momala and John

Fort Worth Mom · Mod/Penguin lover/Princess!

I hope you feel better soon, ed.

Hugs to you!

Mellow Momma · Sniff...sniff, sniff. Yay! A Bum!

Hope you are doing well Ed. Keep fighting. We all want to see you posting for a while yet. Positive thoughts sent your way.

TrudyML · Guru

Fight on, Ed.